Monday, November 10, 2008

Finding Normal.

I was trying to get a fix on what the new normal is in my life. My thought came from a comment, in passing, to someone yesterday when I said, it will be nice when things get back to normal.

Not sure what "normal" is these days.

Prior to September 9, 2007; normal for me was running 1/2marathons and working like a man possessed.
Normal for Janet prior to her leukemia diagnosis, was doing full marathons and running her own business quite successfully.

From September 07 until May 08, my normal was deaf as a stump, walking with first just a walker, then aided by a cane.
A good day was defined by how many lips I read correctly.
Janet's normal was defined by trips to cancer clinic.

From May until now, my personal normal consists of hearing only with the aid of a cochlear implant. I do have a bit of a sway in my walk, but that is "normal" for me now.

I walk using only sight and touch, as my inner ear balance mechanism is long gone. Two out of three ain't bad! So normal walking now has a hitch in my giddy up.

I wake up at the same time as back in my "old" normal days (5:30 am) but my regime is quite different. It seems anything but normal.
Most of it revolves around medical or physical therapy stuff.

I have not worked since that September 9th 2007.

Some part of "normal" returned on Sunday, when Janet returned home after 22 days in the care of Princess Margaret Hospital. Tired, and still sporting a trach and pic line, she is happy to be in the care of Guitar boy and yours truly. We celebrated with pot roast and apple pie on Sunday night, and did everything in our power to spoil her like crazy. Speeder has his "Mom" back and feels more secure in his poodle/neurotic like world.

I wear the right side cochlear "behind the ear" piece with the magnet for a few hours each day, in hopes that sound "appears". As frustrating as that is, I still hold out hope that it will work, and bilateral hearing will come to the brain. In the interim, I am in need of a mapping on the left side to tune up the sound that is arriving a little bit muddy these past few days.

Novembers gray and cold grip graces our lives as we start the regime of driving to medical appointments for Janet in lieu of having her blood counts done while in house. Good news is that she is home and we are delighted. Bad news is that now we do the three hour (return trip) commute twice a week to have them poke and prod and take blood to ensure the rogue cells are staying at bay.

Throw in the mix my upcoming appointments for audiology (two in two weeks) and physio therapy (one this week). And just for sport my GP has decided my cholesterol is running high, and he would like a piece of my action, as would the makers of a statin that will bring my cholesterol into the "normal" range.
There's that word again!

So as the last of the leaves grace my lawn, they will have to wait for a while. My life that I thought was busy before, will move into yet another phase of busy.

Just not sure what stage of "normal" this is.

Warmest,

David

20 comments:

Kay Dennison said...

Normal? You want normal? LOL I gave up on normal a long time ago and just muddle through whatever comes my way.

I'm so glad Janet is home with you and that you're spoiling her properly. Sounds like a bit of normal is returning. I know that makes all of you happier.

kcinnova said...

I'm not sure which comedian said it, but I think it is a book title: "Normal is just a setting on my dryer."

Everyone's life changes, constantly. I'm so glad that your changes this week have included Janet's homecoming.

I continue to pray for all 3 of you.

Hetha said...

Oh yes, "Normal" just doesn't quite exist for us in this household, and that's actually fine with me :-) I am so happy to see that Janet is home and being spoiled by her boys, you can't beat that. I know the coming days and weeks are going to be exhausting, I'm tired just reading about it. But I also know that you two have a gift to make the best of any situation and find the joy in every moment you have together.

I also wanted to encourage you to keep wearing that right processor. You never know. That side went without hearing for a longer period of time and may just need some extra time to reboot. Ethan wore his first processor for 3 months before we saw any reaction to sound.

Take care.

kcinnova said...

Award for you at my place. Please come and get it!

Circus Kelli said...

Normal is a relative term. There are days when "normal" is like "control". Both are only attainable in the "illusionary" sense. ;)

Hang in there Dave and family.

bobbie said...

I really don't believe there is such a thing as "normal".

So very glad that Janet is at home!
That makes up for a lot, I'm sure.

Do keep trying with the right implant. Sometimes things just happen

Chris H said...

It must be lovely to have Janet home again. Diet should help with your cholesterol levels.

Chris H said...

Stop aiming for 'normal'... cos what the hell is normal anyway? We have "how it is"..... and that can be as good as it gets.... just try to live for today and be happy. If you are always trying for some imagined 'normal' you can forget to live your life to the fullest NOW.

jeanie said...

This post reminds me of a saying my father has "Life is what happens while you are busy making other plans".

Jennifer Bruno Conde said...

Yay! Janet's home! That's your normal for now!

Hugs!

Jennifer

jdm said...

I hope you find a sense of "normal" in the midst of all your changes. I'm so glad to hear that Janet is home. I hope she mends well.

I just wanted you to know that you were the inspiration for our middle school awareness activities this month regarding becoming more sensitive to the needs of people with disabilities. Week One's activity promoted really great discussion in the classrooms. In one particular 6th grade class, a boy opened up about having a younger brother with Down's Syndrome. Another student shared about her struggles with epilepsy and others talked about having ADHD. These are conversations they were afraid to hold before because the worse thing to happen to a middle school student is to think they are "different" to their peers. Your family just seems to be on my mind a lot and led me to make this our focus this year. I continue you to hold you all in my prayers.

Angela said...

I would also like to know what normal is for I will surely never be there.

Hope things get swinging the right way soon

Dianne said...

I'm so thrilled that Janet is at home.

As for normal - I've never known what it was - I think it's on a spectrum as all things are.

Sully Sullivan said...

Sorry I haven't been around in so long. Life has become crazy busy.

My message to you is: Don't give up.

If you looks at the progress your family has made in the many obstacles you have faced since September 07, who knows what another year can do.

What was that Beatles song? You know the one. ;-)

M.E. said...

I'm with Kay....I don't even think about normal any more. All you can live is one day at a time, anyway. I'm very glad Janet is home again. Holding you all in the light...M.E.

Hopesrising said...

I think normal is pretty illusive when critical and chronic illness enters one's life. I think we create
our normal..from day to day on what we are able to do. I can't keep up with others so . I am kinda happy with where I am at for now. Its normal for us and that's all that matters.

I am glad Janet is home. And a special pray for hearing sounds.

Thanks for your comments as well. Nice to know others are reading.

themom said...

Now is the time to create your own normalcy. It will have to be what you make of it. So glad your Janet is home and wish you both all the best.

kim w said...

Who wants to be "normal" anyway? Normal is booorrrriiiinggg.

So glad to hear Janet's back home, eating pot roast and apple pie with you.

ronnie said...

I'm so happy to read that Janet is home!

Having spent a lot of time in the hospital, let me suggest that the only "normal" is being with your family after NOT being with your family because of illness or disability. You've both experienced that, and - for now - you're "back to normal". Where you're supposed to be. Together.

Enjoy it!

I am Trish Marie said...

I am convinced there is no such thing as "normal."

So glad Janet is home!