DianrezMusings on communication
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Original: 9/4/2008 10:58 AM
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MishkaZena
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Thursday, September 04, 2008

Why do we say we are not disabled?

 

How is it that we do not regard ourselves as disabled?  Is it because of the way we were raised, to be not different from other people?  Is it because our difference is invisible and outwardly we look and move about like everyone else? What is the origin of this "not disabled" feeling? This attitude is so pervasive that we object to any surgery or expensive devices as less-than-successful attempts to "fix" us to meet Hearing standards.

The majority of the world considers us disabled, often to our consternation. When we say we want deaf children born to us, the world hollers in indignation, "HOW DARE YOU!?" They consider it extreme child abuse. Mostly, though, Hearing people take no notice and therefore omit making  room for Deaf people in their communities. In an earlier time, people would shunt aside Deaf citizens, saying with impunity, "Sorry, we have no provisions for hearing handicapped people." As a child, I was taught, "it's a hearing world and you must adapt to them, not expect them to adapt to you." We were considered selfish and immature for thinking otherwise.

Yet, we gratefully accept special considerations such as schools for the deaf, colleges dedicated to deaf students, interpreters, government assistance, and electronic devices, among others. In seeking jobs, we willingly accept any extra help that comes our way. In public areas such as airports and meetings with public servants i.e. police, we tread with unusual care, mindful of bad experiences that our people had. Despite what we say, inwardly we seem to accept that we are different and that it means accepting help, if somewhat reluctantly.

These special accommodations, some of which were legislated, are lifesavers for most of us. Can we refuse them? Certainly we can, but what purpose does it accomplish? Will it cause people to finally believe we are not disabled as we carry on with pad and pencil, less than perfect speech, expensive aids and struggle to survive at the bottom of the employment applications pile? If we continue to insist we are not disabled, all that will happen is politicians happy to cut budgets and voters not noticing or caring.

While we ponder what it means to own the word "disabled" along with "Deaf", here are two examples drawn from other disability groups to add food for thought.connolly

Kevin Connolly is a man born without legs who says the same thing. Raised by parents who treated him no differently, he graduated with a degree in photography and travels the world on a regular skateboard taking pictures. His scenic photos are striking, but one series is a great hit: captures of people staring at him in shock as he rolls by on the ground in various cities of Europe. He doesn't use wheelchairs or wear prosthetic legs and happily skis, directs movies (see the terrific captioned one on his website!) and lectures. http://kevinmichaelconnolly.com


coelho Similar to the situation of former Congressman Tony Coelho, a man with epilepsy (so severe that he is prohibited from driving, certain occupations and studies) contains the element of not feeling disabled. He objects to attempts to medicate him because trying to "fix him" causes him to feel "not himself." This is an earlier blog I wrote about him: http://www.xanga.com/dianrez/613749478/tony-coelho-original-author-of-the-ada.html


One last thought:
as people with disabilities become more prominient in the media, we could all find ourselves in a completely different situation in the future. Present Governor Patterson of New York is blind, several Deaf politicians have come and gone, we see actors with Down's Syndrome and cerebral palsy, and others.

Oddly, people who are not normally considered disabled are clamoring for recognition under ADA for problems such as arthritis, diabetes, bad backs and even extreme nearsightedness. Realistically, these problems are just as handicapping as being deaf...imagine having to labor in physically demanding occupations despite arthritis making painful the very joints needed in work. No Federal program is available for those specific problems, nor ironically even for Tony Coelho who wrote the ADA Act.

We might find ourselves back where we started in the earlier 1900's: simply people who have to make their own way. Every person has his own challenges.

Next blog:  Deaf people who consider themselves disabled.


 Posted 9/4/2008 10:58 AM - 367 views - 6 comments

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6 Comments

Visit MishkaZena's Xanga Site!
I've pondered that lately, too. Looking back, I grew up knowing that I was deaf but I wasn't treated differently in my family. When I was young, I played with hearing kids who took me for what I was, so I felt equal with them. I would say society considers me disabled. Though I am profoundly deaf, I do not feel disabled. There seems to be two different definitions of disability: society's perception of our disability and our own perception of our disability. Too frequently it's the society's attitudes toward the disabled that are disabling.  
Posted 9/4/2008 11:18 AM by MishkaZena - reply

Visit Roxyrox17's Xanga Site!
If I had to choose between the two minorities: disabled, or language (or something similar to label those who are from a small community that communicates through a specific language), I'd choose the latter.  Because that's all it is.  I simply speak a different language from those around me.  I have no problem if others use a specific label, be it disabled, hearing challenged, deaf, whatever, they have a right to determine how they wish to be labeled, and we should all respect others' choices.
Posted 9/4/2008 7:30 PM by Roxyrox17 - reply

Visit rlmdeaf's Xanga Site!
Dianrez,

I met this very handsome Kevin Connolly last May 2008 at the National Gallery of American Arts in Gallery Place/Chinatown area of DC.

I was morbid how he has been that way from the accident or born that way. He said "Born that way". Wow! He surely had very nice upper muscular body. I seen his works which was very simple and logical. I thought that Kevin was really hot for his upper body.

Robert L. Mason (RLM)
RLMDEAF blog
Posted 9/5/2008 4:40 PM by rlmdeaf - reply

Visit Kristenmomof3's Xanga Site!
I really enjoyed reading this and look forward to reading more posts by you.

Thank you for the nice comment on my post that was featured on Revelife.
Posted 9/17/2008 12:51 PM by Kristenmomof3 Xanga True Member Xanga Lifetime Member - reply

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I have had to kick the, "whoa is me, I am Deaf" attitude out of Rebecca.  You can be Deaf and do anything that a hearing person can do.  Once she accepted this idea, she has become a child with more confidence and will attempt anything.  When I struggle with it is when we had to change her SSI, why is she getting SSI if she is not disabled??  Do I get her SSI??  Do I really believe that she will need it and if I do what is that saying about me? 

I think that the public is becoming more accepting to people who are different and that includes race, blind, seeing, Deaf, hearing, health whatever.  People know that they set their own limits and so do people who are different.  Limits are not set by lack of laws anymore, we make our own limitations.

Posted 9/20/2008 9:54 AM by ushersmom - reply

Visit dianrez's Xanga Site!
SSI and SSD programs should be viewed as transition, or bridge funds to a better situation. For example, they can be invested for a college education, used for purchasing equipment such as alerting devices, computers, hearing aids or even batteries. They can be used for interpreters and travel expenses to investigate programs for the deaf. It can be used to bring in tutors in subjects the child is weak in or to teach the family ASL. These funds shouldn't be viewed as supplementary to the family income, but as a means to defray the additional expenses that Deaf have in comparison to hearing people. The ultimate goal is to no longer need this money.

For the people who are permanently unemployable, SSI can be a reasonable alternative to living on welfare or being a drain on their families' resources. It is what makes group homes and assisted living possible. For those who were laid off or sidelined due to health or childcare responsibilities, it is a necessary bridge to the next stage.

Having a family member on SSI doesn't say anything about the household or the parents; it is a resource like community schools, programs and libraries. It is not a future in itself, because it does not build wealth or security. It is only a means to future independence.
Posted 9/20/2008 10:37 AM by dianrez - reply


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