

Today my audiologist tweaked my current "personal" program, and gave me a new one for crowded areas. Problem is, the "tweaking" knocked me down a notch in comprehension.
It was all kosher and dandy in the cozy acoustically perfect confines of her office, but as soon as I left and got in the car, the road noise was drastic enough to make me throw switch to "noise" program. It was just tolerable in terms of understanding Janet on the drive, although I did go back to the rule of three: 1) Pardon, 2) I'm sorry, again 3) one more time.
It has been a while since the rule of three, and I don't like the rule. I'm not a good rule guy and this one is maddening.
Tragedy number 2 was at dinner when I was back on my "normal" program and Guitar boy and Janet both sounded like they had a second and third helpings of deep fried bass with their chicken souvlaki. I'm talking deep south, and deep fried bass. NO, not the fish but the 40-100 of frequency type of bass that should be calming, but is lower than whale poo poo. Has a re verb to it that makes Sting's bass sound like a piccolo.
So I scrambled to laptop to send emergency email to Suzanne the super audiologist and request (beg) another emergency mapping session. I will never complain again Suzanne, I swear, just give me back my old maps!
Exciting issue: I posted early today that becoming bilateral in Canada was just a pipe dream. This was posted after I researched the snot out of Google and Yahoo, reading every piece I could find. All I got was frustrated magnet heads, like myself, who want to go double magnet!
There were newspaper pieces from several reputable Canadian dailies that shouted sad new stories like this one:
Weighing medicine against money
A couple forced to pay CHEO $30,000 for a procedure to restore their daughter's hearing is lobbying to change the way the government funds expensive medical treatments
Mohammed Adam, The Ottawa Citizen
Published: Tuesday, June 26, 2007As much as she tries, Josee Mondoux can't understand how, in Ontario, a child could be left deaf in one ear simply because the government -- which will spend $37 billion on health care this year -- wants to save $30,000.
Ms. Mondoux says there is no excuse for what is happening to many deaf children in Ontario. She says the children, including about 20 in Ottawa and, until recently, her five-year-old daughter, Sydney, are being denied vital cochlear implants because the government is not convinced that spending the money is justified.
"If you have problems with your eyes, they don't say we'll give you one glass for one eye," she said. "I don't understand why they are prepared to let children go deaf in one ear for the rest of their lives."
End of Story
So I asked what my chances were of ever going bilateral. Suzanne told me that at this point in time the hospital does do many bilateral implants.
All children are given bilateral implants right out of the gate. Which they should. But I was was now curious as to why I could find no statistics of any sort to show me this amazing claim. The good old internet is fine for some research, but still needs bags of salt grains to sort out the wheat from the chaffe. Going back after I got home, most (almost all) of the stories were at least one year old.
This is indeed good news for me, as I believe deaf children should have a bilateral implant. I believe that deaf kids be given every opportunity to have a childhood as close to hearing children as science and technology can provide.
I am overjoyed by the fact that it is all funded by health care as well. I am not surprised by this, just disappointed there is not anything to read about bilateral children in Canada, and how it enhances their lives.
Second heart stop I had was when she told me that Sunnybrook (where my clinic is) does five bi- laterals a year for research and foots the bill, through the grants they receive to do cochlear research.
Well my head spun aroundand just about snapped off. I ripped the knees out of my pants as I got down on my knees begged to be one of those lucky double magnet wearing, double hearing, top drawer cochlear kids.
Hey you gotta ask right.
Not really up to her, but if anyone reads this and has any say/pull/draw/vote in the Sunnybrook research team...I am one hell of a lab rat and am ready willing and able to have the world famous Doctor Ned, drill and punch another AB cochlear in my right side.
Hell I may even shave it tonight just in case there is a quick opening and a free operating theater.
Warmly,
David

16 comments:
? Does this mean you are only 'hearing' from one ear? Wow, that sucks... but then at least you are hearing again eh? Good luck with becoming a lab rat.
Hey David - I love your style, asking to be one of the kids!!!
By the way - am linking over to you today as, after the comment you left me yesterday I came by for a visit (you may have noticed the 2 hours visit from someone on the other side of the world) and all I can say is WOW - I love your writing and your style.
New Zealand has a similar healthcare system, funde by the govt, who refused to do bilaterals. Canada and NZ are one of hte few OECD countries that do not do bilaterals as a matter of course. Australia does.
the stupid thing is that parents have gone out and bought the 2nd implant for their children here. One is govt funded, the other is privately funded. So the map one, under govt funding, then have to pay for the 2nd one to be mapped. Ludicrous.
I personally can't have two implants - my left ear is basiclly dead and no implant will help it - so Im gonna have to be a satisfied one implant user ;)
Cheers
Robyn in nz
Thinking of you
I know communication must stink when you have to have them repete so many times.
Although because I can't see I don't always know when people are talking to me.
They'd be foolish not to pick you.
I do believe I would make it known to someone (dr office or dr himself) that I want to be considered to be the lab rat ... thats falls into those blurred lines of tickle them make your name pop up ... does that make sense??? ok... send me the number I could make a international call for you :)
HEY COULD YA"LL PLEASEEEEEEE give my friend David a Right ear ... ok he has a ear but a implant so he is balanced??? hey.... maybe thats what is causeing some stumbles... you NEED the other side to have the implant so you will be balanced? ok I am being silly~ HUGSSSSSS
Laura
I would be happy to write you a glowing letter of recommendation!! :) You totally need two ears!
I went for a map yesterday, and it sounded good in the office, and I even did well on all my testing, but by last night I was coming unglued by how tinny the females in this house sounded (and there are a lot of them, so that was a whole lotta tinny). I have wavered between e-mailing Susan for an emergency map and sticking it out for another day...it's not bad, it's just taking some getting used to. And I'm not entirely sure I even have time for another map this week...it is insane here!!
I'm glad you got yours back, though...what a relief!
"2) I'm sorry, again 3) one more time."
I've used those phrases myself, though in a, ahem, slightly different situation. ;)
Love you bro!!!
♥
I came across from Jeanie in Paradise.
1) Pardon, 2) I'm sorry, again 3) one more time.
4) speak story a little louder
the story of my life !!!
Very interesting blog ... I have a moderate to severe hearing loss - left ear basically deaf (no hearing aid helps) and right wear an antique hearing aid that needs replacing.
Mine are from ear infections possibly another cause or surgery.
I believe kids should have double cochlear implants too.So sad about the little girl.
My parents were in Lion's clubs in Australia and involved in deaf camps ... camps for kids (teens) who were deaf. Many of the kids were getting implants.
I hope you get your wish to be a lab rat.
david- being a double magnet is good thing. Means you are more attractive than ever.
web page of trip to rockies on link through the blog.
It would make sense since we have two ears! I will be more then willing to help out anyway I can :)
Shaved and ready for theatre, David? How can they refuse you?
Thinking of you.
Cochlear did some research on bilaterals a while ago using USA, UK and German patients. Have a look on their cochlear.com website.
Im organising a movement here in NZ to get the government to take notice of the fact two is always better than one. As i've mentioned, I use a hearing aid on one ear which helps enormously.
Not too sure what you hear with the CI? I hear down to 15 db, and down to 5db with the HA.
David, dear
Good blog. You really should contact the head of the hospital/research people/everyone!! ;-) And go in PERSON, because I've found that going in person really makes them realize and think of you as a REAL person instead of just someone on paper that it's easy to deny. Keep fighting to get it!
It seems like you've really been improving (especially since you were deaf and this implant obviously has changed that), so you would definitely benefit from being a bilateral "magnet head!" Tell them that. :)
Also, I'm sorry the mapping wasn't that great!! Hopefully you and Suzanne will "get" the right program soon!!! Why were they changing the program, by the way? To try and see if it could be "better??"
Also,
I AM THRILLED ABOUT THE FACT IT PLUGS INTO THE HEADPIECE!! Wheee. I have been telling people nonstop that I will have music streamed DIRECTLY to my brain, in a sense. Who else can really say that, beside CI users? ;-)
I'm not sure if I reply to posts IN my blog (does it let people know if I've replied?) or by going to the other person's blog, which is something I asked Abbie too... so, I'm sorry about the multiple comments, haha.
Look at this way, if hearing people have two ears to hear, why not can the deaf people have two CIs instead of one?
I have always told friends that if people have glasses, do you think the insurance to refuse to put in one prescription len instead of two? I doubt that.
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