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SayWhatClub Weblog

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Fast Talking Friends

SayWhatClub Weblog This is NOT a rant (well, maybe a little) - just some existential grumbling. Great news! My recently acquired BTE hearing aids have made a huge improvement in my speech recognition. But mind you, improvement is just that - my SR still isn't “normal”; I still need most speakers to face me, and though group conversations [...]
Language Tech Thu, Oct 09 2008

I’m Tired Of Feeling Excluded

SayWhatClub Weblog This is a rant, but if it educates just one person with perfect hearing I'll feel it was a success. I'm tired of being excluded from office chat at work, from family chat at home and from general discussions everywhere else. Friday morning, like every other morning I work, four of us were getting ready for [...]
Culture Sun, Sep 28 2008

I Hear You Laughing

SayWhatClub Weblog I began this post a while back and then put it aside, unsure as to whether I actually wanted to share it, but it seemed fitting to submit a post that includes a poem written just a few days after 9/11/2001, this same week seven years later. It is often true of those with a lessened [...]
Language Tech Tue, Sep 16 2008

On Being Hard-of-hearing/deaf and COOL!

SayWhatClub Weblog I don't know if some of you do this, but I have this knack for noticing other people's hearing aids. Last week I met a young woman in her twenties with a beige in-the-ear aid. Usually when I meet someone else wearing aids, I like to ask them about it. Not that I'm nosey, but [...]
Tech Culture Wed, Sep 10 2008

On the Ground in a Hearing World - Getting What You Need

SayWhatClub Weblog For starters, this isn't just a post about getting accommodations for hearing loss; interpreters, CART, captioned TV/movies/phones, etc. Nor is it about picking your way through the mindless bureaucracy of getting assistance for the above (and hearing aids, etc). This post is mainly about strategies for coping with hearing loss in real time, with real [...]
Tech Legal Culture Sat, Sep 06 2008

Relearning Life

SayWhatClub Weblog Have you seen the becomeanex.org commercials that focus on relearning life without cigarettes? The subjects of these commercials are going through their daily routines, but seem to be having trouble with even the most simple of tasks because of not physically having a cigarette in their hand. I know you have seen them: A woman stumbles to her car, fumbling [...]
Media Art and Storytelling Culture Fri, Aug 29 2008

Captioning the world and speaking of politics….

SayWhatClub Weblog I don't know about your town but even here in NYC, I can't find enough theatres that have the most recent films with closed captioning. Usually the most recent films will be shown in Manhattan. Not exactly the most convenient place for me to get to. I realize we're suppose to be grateful that there [...]
Tech Sat, Aug 23 2008

Make An Offer. . .But look at me first

SayWhatClub Weblog It's garage sale season and mine definitely needs to be cleared. The other day, my mother– garage sale queen that she is– took one look at the mountain of junk piled up where our cars should be, and declared it was time to have a sale. On a closet cleaning frenzy since January, I've been hauling trunk loads of [...]
Art and Storytelling Thu, Aug 14 2008

MISSED/MISSED IN THE DARK by Michele

SayWhatClub Weblog When you rely on visual clues, such as lip/speech reading, body language, facial expression, and even sign language, in order to hear, it becomes a fact of life that communication during the darker hours will prove a challenge, and eventually an impossibility. Take away adequate lighting in any situation and your lack of hearing slowly [...]
Language Culture Tue, Aug 05 2008

Please Face Me - And Make it a Double (part two)

SayWhatClub Weblog 7/28/2008 - Skirmish Lost - War Declared! The following transcript of a conversation I had today is not complete or perfect - it's from my best recollection upon arriving home in rather profound emotional turmoil and disappointment. I had to scribble it on paper as fast as I could, while it was fresh in my memory. [...]
Language Audism Tech Legal Fri, Aug 01 2008

Please Face Me - And Make it a Double (part one)

SayWhatClub Weblog Questions, questions. “What do you think made you start drinking?” Laundry List: - Pending divorce and expected result: bankruptcy - Looming debts rivaling the national budget - Loss of driving ability from sporadic bouts of vertigo (fear factor) - Tinnitus - Hearing loss “What - wait, you have hearing loss?” I read your lips and guess much of ...
Language Tech Legal Wed, Jul 30 2008

SOCIAL BLUFFING by Katie (guest writer)

SayWhatClub Weblog Becoming hard-of-hearing a few years ago really turned my world upside down. Before the hearing loss, I was a real outgoing person in social settings. Now, I find myself being left out (unintentionally) of some great conversations. The reason I’m left out is because I cannot hear the conversation. In a group of people, instead [...]
Language Culture Sun, Jul 27 2008

Deafhood– A Late-Deafened Viewpoint

SayWhatClub Weblog Vallhallian recently summarized Paddy Ladd's definition of Deafhood, interpreted as a process of accepting (actualizing) one's deafness. Acceptance or self-actualization, according to Paddy Ladd, means participating fully in Deaf culture and apparently using ASL to communicate. Anything short of that equals some kind of “arrested development,”...
Culture Tue, Jul 22 2008

The SWC Philadelphia 2008 Convention - July 9-12, 2008

SayWhatClub Weblog The SWC Philadelphia 2008 Convention July 9-12, 2008 My Perspective by Paul Schneider This was both my first SWC con, and my first time in Philly. The short description: AWESOME. I'd been told, of course, that attending an SWC convention is an amazingly wonderful experience - but there aren't any words that can capture what it really means. I met so [...]
Language Culture Tue, Jul 15 2008

The SayWhatClub Convention in Philadelphia

SayWhatClub Weblog I find it very interesting to attend conventions where everyone is either deaf or has a hearing loss. I love meeting people with hearing loss. There's alot of common ground. We all have been there and done that stories to tell and boy some of these stories are awesome. Its great seeing others in hearing [...]
Culture Sun, Jul 13 2008

I Need To See You Speak

SayWhatClub Weblog My very first memory of needing to 'see' someone speak in order to ‘hear' them comes from my early childhood, during Sunday School at the church where my mother sent us to worship. I say “sent us”, as Mom rarely would go to church with my older sister and me. Most Sunday mornings we were [...]
Art and Storytelling Culture Mon, Jul 07 2008

Aids, gadgets and technology, OH WOW!

SayWhatClub Weblog When u look at all the technology out there from the beginning of their creation to its current status, u'll note that most technology started out large and clutsy looking and eventually the product was reduced in size BUT improved in its functioning purposes . For example, Look at computers, headphones, cellphones, xerox machines, fax machines, TTY's, [....
Tech Mon, Jun 30 2008

How To Read Your Audiogram

SayWhatClub Weblog Last month I completed a project on audiograms for a class. Realizing many people with hearing loss don't understand what all the symbols mean, I thought I'd condense it into a blog. I am not an audiologist, nor an “expert” on audiograms. I'm just a person with hearing loss, so if something [...]
Tech Thu, Jun 19 2008

How I Hear by Michele

SayWhatClub Weblog What identity have I chosen as my own? This question came after reading Kim's blog “On Developing A ‘deaf, not Deaf' Identity...” posted May 1, 2008. For me, the answer to that question is still up in the air and a big part of the reason I joined the SayWhatClub is so that I can [...]
Culture Wed, Jun 11 2008

A Night at the Movies

SayWhatClub Weblog Last Saturday, I went to see “Indiana Jones and the Kingdom of the Crystal Skull” in rear-window captioning (RWC) with a friend. Though we got there early enough, the snaked around the corner by the time we found a parking space. When we finally made our way into the theater there were only a few scattered front [...]
Art and Storytelling Tech Culture Fri, Jun 06 2008

A Hearing Aid Diary

SayWhatClub Weblog Yesterday, I got my very first pair of hearing aids. It's too early to tell how well they'll ultimately work for me, but I've posted, and will continue to post, a diary of my experiences on my blog. You can read my first entry at: [link] I'll keep posting (sometimes daily, sometimes longer) as significant milestones are reached. Paul [...]
Tech Sat, May 31 2008

I Live In A Friendly Neighborhood. . .

SayWhatClub Weblog Lately I've been enjoying getting ouside now that it's spring. I have been walking in my neighborhood and also on my lunch breaks while at work. I love the way the air smells on a warm day after a good rain. What's bothering me is the comments people make. I know they've said something, but I [...]
Tech Tue, May 20 2008

On Developing A “deaf, not Deaf” Identity. . .

SayWhatClub Weblog Val's blog post touched a nerve in me. She didn't consider herself “deaf” until she got her cochlear implant. Only then did she begin to identify herself as a deaf person. What changed? I found myself nodding while reading her blog. This question of “When are you considered deaf?” comes up among hard-of-hearing and late-deafe...
Culture Thu, May 01 2008

What is a loss?

SayWhatClub Weblog When is a loss a loss? I recently lost a good friend to a massive heart attack. I also recently heard some people debate whether it was more difficult to adjust to losing your hearing at birth or later on in life? I guess, its all relative, yet I can't help but feel, we need to put [...]
Sat, Apr 12 2008

This Song’s For You

SayWhatClub Weblog Do you often hear music in your head since you lost your hearing? Dr. Oliver Sachs explains the relationship between hearing and neurology in his latest book called, Musicophilia. I was so interested in learning more about it that I bought a transcript of his interview with NPR radio. If you want the full transcript, go to npr.org and [...]
Sat, Apr 05 2008

The Devil in the Details - The Power and Limits of...

SayWhatClub Weblog In all of life, particularly work, I've noticed that we humans have a tendency to over-simplify our challenges. That's why, if you've ever seen or read about how NASA manages their projects to the tiniest detail (and even that can't completely avert a catastrophe), no matter how much effort we put into getting things set [...]
Language Tech Sun, Mar 30 2008

Friends of my friend tinnitus

SayWhatClub Weblog My tinnitus is getting the best of me this week. With the weather changing from cold to warm and from warm to freezing, my tinnitus gets louder and louder each day. I live near the beach so I imagine that the roaring sounds in my head are the waves pounding against each other. I feel sluggish, [...]
Tue, Mar 25 2008

Why don’t more deaf and hard-of-hearing people learn ASL?

SayWhatClub Weblog Most the students in my ASL class hear well. Realizing how small the Deaf population is, it seems another language might be a better choice for them. Like Spanish. Working with the public, I could use Spanish almost daily. It's extremely rare when a Deaf patron shows up needing help, and in most cases writing will suffice. It's not [...]
Language Education Culture Wed, Mar 19 2008

Drunken Sailor Syndrome - Living and Working with Vertigo

SayWhatClub Weblog Vertigo, commonly known as “the spins” is a condition where a person loses their sense of balance, so the world seems to spin around them, and “gravity” seems to misbehave. Most people have experienced very temporary vertigo by playing the childhood game of spin-till-you're-dizzy. Once you stop - that's the most common feeling of ve...
Sun, Mar 16 2008

SayWhatClub Weblog Hi Everyone. This is the 21st of 27 Idea Topics I listed on three sheets of paper called: “A Toolkit of Ideas For People With A Hearing Loss” Sheet 1 Introduction Ideas 4 topics Sheet 2 Toolkit Ideas 18 topics Sheet 3 Closing Ideas 5 topics 21 Hearing Loss Profile: People with a hearing loss should consider preparing a profile of their hearing [...]
Culture Tue, Mar 11 2008

Technology at its best

SayWhatClub Weblog I can't imagine technology getting any better other than giving us new ears to hear with. Most recently I discovered that Sprint has something called web tel. What a creation, what an advantage this will give us, but most of all, it will help improve many of the lives of people with hearing loss who [...]
Tech Sun, Mar 09 2008

What Accommodations Should a Hotel Provide?

SayWhatClub Weblog Summer will be here before you know it, and many of us are making our travel plans already. Hotel stays can be a major pain when you're deaf or hard-of-hearing. Most of us have created accessible homes. We've got our captioned televisions, our accommodated phones with amplifiers, Captel, TTY or a VP. We might have [...]
Media Language Tech Legal Wed, Mar 05 2008

My First Experience with CART in the Workplace

SayWhatClub Weblog CART (Communications Access Real Time) refers to any technology that allows a Deaf or HOH (hard of hearing) person to read a live conversation as text in “real time” - normally through the services of a captioner (person) trained to listen and transcribe a conversation on a computer keyboard. I've had some difficulty with my hearing [...]
Tech Sun, Mar 02 2008

Hearing aid update

SayWhatClub Weblog I just ordered a new hearing aid to replace the one that died last week. The old one was a state-of-the art GN ReSound digital aid when it came out 6. years ago. The new one is a Unitron Unison. It's considered an entry-level 2-channel digital aid, but it offers more features than the old [...]
Thu, Feb 28 2008

The baby boomers are coming the baby boomers are coming…..

SayWhatClub Weblog The baby boomers are coming down with something. More and more people from the psychedelic days of loud music are experiencing a different kind of humming in their heads (and it ain't the music from their IPods either). They're straining their eyes to see your lips move but no words are jumping out at them (and they haven't smoked [...]
Language Tech Mon, Feb 25 2008

One Ear or Two?

SayWhatClub Weblog I've been spoiled. For most of my life I've been able to hear equally well with two ears. My hearing loss is about the same in both ears, and I usually wear two hearing aids. That's why it came as a shock this week when one of my aids died and I had to function [...]
Tech Culture Fri, Feb 22 2008

Have you heard the latest?

SayWhatClub Weblog Did you hear the latest? According to a recent study published by the Better Hearing Institute, your earning power can be severely impacted by hearing loss. Those with profound hearing loss may be earning up to $20,000 a year less than their hearing colleagues. Studies indicated that the more hearing loss a person suffered, the more their [...]
Wed, Feb 20 2008

My Friend, Tinnitus

SayWhatClub Weblog I'd like to introduce you all to one of my faithful friends, Tinnitus, or “Tinny” as I like to call him these days. Tinny has been at my side (right, that is) for about 40 years now. In more recent times, Tinny's been expanding both his venue and his sonic repertoire - he now visits my [...]
Sun, Feb 17 2008

What Accommodations Should A Hospital Provide?

SayWhatClub Weblog After two back to back trips to the hospital that ended in two surgeries, I began to wonder about hospital ADA requirements. Yeah– I know– better late than never. I read lips well enough that I didn't need an interpreter. . . I thought. I can't use one anyway, since I'm not fluent in ASL. My hard-of-hearing husband was able [...]
Legal Culture Thu, Feb 14 2008

Lets talk politics

SayWhatClub Weblog Looks like Clinton and Obama will be going neck and neck till the very end of the primaries. Clinton's commercials had captions but I had not seen any from Obama. I recently read on someone's blog about their attending one of Obama's big speaking engagements. There was a sign language interpreter placed in the back of the stage [...]
Language Wed, Feb 13 2008

Deaf and hearing loss communities

SayWhatClub Weblog Since Pepsico created a commercial for the Superbowl involving the Deaf community and using sign language in that particular commercial, the AG Bell auditory school of thought (i like calling it that) wrote a letter to Pepsico expressing disappointment. Personally, I did not view this commercial necessarily as a victory as much as I saw it as a clear recognition of [....
Language Culture Sat, Feb 09 2008

Testing, testing, left ear to right ear…come in please!

SayWhatClub Weblog According to the National Institute on Deafness and other Communicatins Disorders (NIDCD): “Approximately 28 million Americans have a hearing impairment. Two to three out of every 1,000 children are born deaf or hard of hearing. Nine out of every 10 children are born deaf to hearing parents. 1 out of every 5 people who could benefit [...]
Tech Fri, Feb 08 2008

First Blog — Linda’s story

SayWhatClub Weblog In mid-1999, I stood at the elevators outside of my ENT's office, tears rolling down my cheeks. I'd just found out that my hearing had taken another huge drop. I'd been progressively losing my hearing for about 5 years. I'd been using hearing aids for about half of that time, but I was needing adjustments [...]
Culture Thu, Feb 07 2008


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