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Combining gene-therapy and CI? Hmmm, interesting! Becoming Deaf in Norway 2007 Combining gene-therapy and CI? Hmmm, interesting! Maybe this could have cured or lessened the impact of the tinnitus that I have too? Too bad this kind of research takes ages…. Tue, Nov 25 2014 Starting a new blog–in Norwegian Becoming Deaf in Norway 2007 I will not kill this blog, there is too much good stuff and loads of information on it. I might even write more if anything significant crosses my path. But as I have arrived at a new chapter in my life, it was time to move over to a new blog. That blog will be […] Tue, Nov 25 2014 Another chapter… Becoming Deaf in Norway 2007 Right now I’m writing from my temporary new home: Ål Folkehøyskole. I’m in the process of learning Norwegian sign language. This stage of rehabilitation will take me through the winter up until May 2014. Why sign-language now, after two CI’s? Well, several reasons. Prime reason is that my wife and I found out we had […] Tue, Nov 25 2014 Combining gene-therapy and CI? Hmmm, interesting! Becoming Deaf in Norway 2007 Combining gene-therapy and CI? Hmmm, interesting! Maybe this could have cured or lessened the impact of the tinnitus that I have too? Too bad this kind of research takes ages…. Thu, Apr 24 2014 Starting a new blog–in Norwegian Becoming Deaf in Norway 2007 I will not kill this blog, there is too much good stuff and loads of information on it. I might even write more if anything significant crosses my path. But as I have arrived at a new chapter in my life, it was time to move over to a new blog. That blog will be […] Thu, Oct 24 2013 Another chapter… Becoming Deaf in Norway 2007 Right now I’m writing from my temporary new home: Ål Folkehøyskole. I’m in the process of learning Norwegian sign language. This stage of rehabilitation will take me through the winter up until May 2014. Why sign-language now, after two CI’s? Well, several reasons. Prime reason is that my wife and I found out we had […] Wed, Sep 04 2013 Se «How A Cochlear Implant Works by Advanced Bionics» på... Becoming Deaf in Norway 2007 Sun, Jul 14 2013 Hørselstap – sorg og aksept, stress og mestring Becoming Deaf in Norway 2007 Hvorfor jeg ikke fant denne artikkelen før nå er merkelig, men til tross for datoen er den fortsatt meget aktuell. [link] For my English readers a Google translate (quality of translation is a bit whacky, but read between the lines and you will get the essence of the article) version: [link] Fri, Jun 07 2013 Another good set of sound simulations Becoming Deaf in Norway 2007 And this time they portray various effects of hearingloss as conceived by the brain, it’s not just a simulation of various frequency losses. I had all three of them, and with bilateral CI I still have to “work my way trough” “loss of clarity” and “recruitment” (to some degree in various sound environments). These sound [...] Mon, Apr 08 2013 Convention on the Rights of Persons with Disabilities Becoming Deaf in Norway 2007 Link directly to the UN charter For my norwegian readers Sat, Feb 23 2013 2012 in review Becoming Deaf in Norway 2007 The WordPress.com stats helper monkeys prepared a 2012 annual report for this blog. Here’s an excerpt: 4,329 films were submitted to the 2012 Cannes Film Festival. This blog had 16,000 views in 2012. If each view were a film, this blog would power 4 Film Festivals Click here to see the complete report. Mon, Dec 31 2012 The tinnitus I hear – all the time Becoming Deaf in Norway 2007 I just came across some sound-samples that simulate my own tinnitus. I wanted to share them, so perhaps people around me better understand why I am tired or unable to participate in social activities. This is similar to the "quiet" tinnitus that I have all the time 24/7 (I can barely hear this sounds when [...] Tue, Dec 18 2012 Nedsatt hørsel? Sliten? Kurstilbud Becoming Deaf in Norway 2007 Nasjonalt senter for hørsel og psykisk helse arrangerer mestringskurs for deg med nedsatt hørsel. Oppstart januar 2013. Nedsatt hørsel innebærer for mange en kontinuerlig kompenseringsinnsats. Du må kompensere mentalt for den informasjonen du mister, du kompenserer for muskulære anstrengelser i nakke og skulder, for nedsatt balanse, du bruker energi på å lokal... Sun, Nov 25 2012 My new crusade – raise awareness about noise Becoming Deaf in Norway 2007 Communications is by far mostly verbal. Aside from the visual aspects (screen image, video/film, body language etc.), information is mostly spread verbally/auditory. Think about how much information exchange that takes place verbally in these arenas: education, court system, politics, entertainment, family, parties and so on and so on. The last year or so I have [...] Fri, Oct 12 2012 Hearing Loss Linked to Three-Fold Risk of Falling –... Becoming Deaf in Norway 2007 [link] Tue, Aug 14 2012 More bass, more! Becoming Deaf in Norway 2007 Was at appointment at hospital today. Time to give my Bionic hearing some sound adjustments. Before I arrived at appointment I thought that there was no need to adjust anything. My speech comprehension is good, and the left ear is coming along nicely, slowly catching up with my right, steadily getting better and better “resolution”. [...] Tue, Jun 05 2012 Senses under scrutiny – an intermediary update Becoming Deaf in Norway 2007 I have a future post in mind, not yet mature, concerning the effect of my second implant on tinnitus. Right now I have another issue that needs (and gets) medical attention. I have in earlier posts explained about suspicions about migraine aura. In this regard I have been to a neurology specialist, and the first [...] Mon, Apr 02 2012 Abridged CI / health history Becoming Deaf in Norway 2007 Date Event May 1972 Born 1975 Wears hearing aids for the first time 1995 Drops out from higher education, due to hearing 2001 Looses job, gets divorced Early 2006 First thought of getting CI Oct. 2006 Suffering full burnout syndrome collapse 28.12.2006 Starting ci4me2007.wordpress.com blog Late 2006 My GP sends me to specialist as CI [...] Tue, Mar 06 2012 Bridge over troubled waters – 6th day CI activation Becoming Deaf in Norway 2007 Getting stereo again is just great, I kid you not. I have been walking on clouds this week, despite some troubles. (read more below picture) Sound is, even though my newfound ear is very weak and undeveloped, much, much more gratifying to absorb. It is as if the sound world just came alive. [...] Sat, Mar 03 2012 Activation no. 2, first impression Becoming Deaf in Norway 2007 Finally came the long awaited activation day for my second Cochlea Implant. Did go by myself this time, knew a lot about what was going to happen and so forth. So, first we went through the the initial single electrode check and level determination (in order to avoid a cataclysmic neural shock to the neurotransmitters [...] Mon, Feb 27 2012 CI no.2 activation date set Becoming Deaf in Norway 2007 Got word yesterday, that I will get stereo back Monday 27.2 at Rikshospitalet. I’m now looking very much forward to getting started on the last leg of my very long CI-journey. I’m quite tired of this, and just want to get on with living and forget about it. I have been working on coping and [...] Fri, Feb 17 2012 How am I doing, 8 days after bi-lateral surgery Becoming Deaf in Norway 2007 A lot of people asks me how I am doing, so I better post an update If you want to know more about Cochlear-implants, click linked image below to read more Compared to the first surgery I underwent in 2009, this operation was a walk in the park. My surgeon specializes in gentle surgery, and [...] Thu, Jan 26 2012 Second implant in place Becoming Deaf in Norway 2007 The second implant is now in place, and all went well. Today is 2 days after operation and Im a little dizzy and not feeling great. Almost like a little hangover. I didnt sleep much the first night, and avoided sleeping during the first day. I slept through last night, 9 hours. Priority now is [...] Fri, Jan 20 2012 New insights, new perspectives. Becoming Deaf in Norway 2007 In terms of becoming deaf, I have now been working for some time on becoming a hearing person again. Mostly it has been about taking my life back, but at the same time, my auditory senses are getting better and more used to the new situation. As becoming deaf was a traumatic, frustrating, depressing [...] Tue, Jan 17 2012 A new chapter, at last Becoming Deaf in Norway 2007 Been a very long pause in my blogging. Has been a very eventful year (actually its more like 6 months ) since my last blog-entry was posted. I write this on my mobile phone, hence the shortness of text and expressions. Here are the highlights: Unilateral hearing is pretty good. Downside is tinnitus and problem [...] Sat, Jan 14 2012 Your head hurts, but you dont bleed part II Becoming Deaf in Norway 2007 The tinnitus continues to be a real challenge. It is not freaking me out, I refuse to freak out because of it. That would mean to give in to the dark side. But it is a genuine stone in my mental shoe, as well as an extra hurdle in my efforts to be a social [...] Thu, Jul 28 2011 Your head hurts, but you dont bleed. Status medio 2011. Becoming Deaf in Norway 2007 Many things to write now. First of all, I kept my promise to myself to let go a little of this whole hearing/CI thing in my thoughts. That is reflected in the lack of postings herein lately. It has been successful, I spend less time and effort fighting the “inevitable”. My energy has been aimed [...] Thu, Jul 28 2011 Michael Chorost explains the concept of Cochlear Implants. Becoming Deaf in Norway 2007 The Author of Rebuilt, Michael Chorost was recently captured in a video interview published on YouTube. I found his explanations so elegantly put, that they should be viewed by everyone interested. A lot of information, but at the same time, very elegantly put and easily understandable. Hope you enjoy these: its divided into four videos, [...] Thu, Apr 28 2011 Something wonderful happened today Becoming Deaf in Norway 2007 I am having Easter with my parents, and have my son with me too. The weather is just incredible, with temperatures over 20C and sunshine. Its almost like summertime! Since my first CI surgery, I have had a steady progress with both learning what sounds means, and understanding speech. Of course, my tinnitus makes it [...] Thu, Apr 21 2011 Useful comparison chart Becoming Deaf in Norway 2007 The brand-independent and informational website, Cochlear Implant Online recently posted a comparison chart of the three CI-manufacturers products. I havent studied it, but at first glance it seems appropriate to anybody trying to get an overview of the CI-market. Kudos to the girls running Cochlear Implant Online ! Here is the link to the actual [...] Wed, Jan 19 2011 Tired of being tired Becoming Deaf in Norway 2007 Hello world I know it has been a while since I posted, and it has been intentionally. I need to focus on other things than my problems, including my hearing difficulties. I need to just live my life I think that is the best medicine right now. I have therefore decided to take a long [...] Wed, Nov 10 2010 Shy? Investigating social phobia Becoming Deaf in Norway 2007 Social phobia, also know as social anxiety, is the third largest psychological problem in the world today... This diagnosis has a higher representation among people with hearing difficulties (and other populations segments), than in the average population. This site offers more information: [link] Background: Katharine Cecilia Peterson (Kate for short, brief pre... Sun, Aug 29 2010 Summa summarum Becoming Deaf in Norway 2007 I will in near future speak to a group of people with special interest in CI. This group will consist of both professionals and other fellow cyborgs. In regards to this speech, I was approached by a fellow speaker at the same conference, and she asked about what I would talk about. As I wrote [...] Wed, Aug 18 2010 Two announcements in Norwegian (to my Norwegian readers) Becoming Deaf in Norway 2007 Til mine norske lesere: Jeg skal p to konferanser i den nrmeste fremtid og hper se dere der ogs! Vi m snakke sammen! Konferanse 1: leve med Cochlea Implantat (CI) - kurs for voksne pasienter og deres prrende v. Lrings- og mestringssenteret Rikshospitalet Tid: 1. og 2. september 2010 Sted: Nasjonalt senter [...] Sat, Aug 07 2010 Clear Voice and more thorough thoughts Becoming Deaf in Norway 2007 Shortly after my last blog post I adjusted the Clear Voice from a medium setting, to low, following the first two weeks of trying it in the medium setting. I absolutely found the medium setting useful in noisy environments, but could not use it while in a non-polluted environment. It simply takes away too much [...] Thu, Jul 15 2010 A critical review of Clear Voice and other things Becoming Deaf in Norway 2007 First of all, let me introduce Advanced Bionics Clear Voice. Then I want you all to know that I have tried and used this software product less than a week. And I absolutely love it But; it is not perfect. It is designed to do its job in noisy surroundings, to help bringing out human [...] Tue, Jun 29 2010 More brainwork 3 important personal discoveries Becoming Deaf in Norway 2007 Im progressing well with my hearing capability, and 4 weeks after my 6 month tune-up, weve seen and detected some real progress in my capability to distinguish some really similar sounds. Similarly sounding vowels can be hard to distinguish when accompanied by certain consonants either before or after that vowel. She has many lists of [...] Mon, May 03 2010 Insight through peers Becoming Deaf in Norway 2007 A little while ago I received a comment on this blog. Richard Rutherford had something very important to share. I feel compelled to provide his thoughts to you all, in its own post. The initial reason for that is because of what he put his finger on: the issue of audism related to self destruction-mechanisms. [...] Sat, Apr 24 2010 Life is getting easier Becoming Deaf in Norway 2007 I feel less commitment to this blog now, and for that Im sorry. But as things develop in regards to the CI, so does my life. The hearing falls slowly into place, and I can start to concentrate on other more mundane (but still very important!) things This is a good thing for [...] Wed, Apr 07 2010 The difference between recruitment and tinnitus Becoming Deaf in Norway 2007 I just want to be very clear on the difference between these two phenomena. Theyre both auditory sensory related, but have some significant differences. Tinnitus is best described as phantom sounds. The sounds are audible to the one affected individual only, and there is no way to measure tinnitus scientifically. Only thing I can think of, [...] Mon, Mar 22 2010 What happened with the recruitment? Becoming Deaf in Norway 2007 I got this question from a reader (Candy): Kim's post send me here, and I really like your post. What gets me amazed is that I do have that problem some of the time and I never knew there was a word for it! Do you have implants now? [...] Fri, Mar 12 2010 Tinnitus stress management and other things CI Becoming Deaf in Norway 2007 Spring is right around the corner and the sun is shining upon us again This winter has been put to very good use by yours truly. Ive learned to hear again! I consolidated with my fabulous girlfriend, and we have purchased an apartment together I got a better [...] Tue, Mar 09 2010 Unrealistic Expectations from the World? Audism? Becoming Deaf in Norway 2007 What do people expect from me? They expect me to participate in social activities and to be part of the common consciousness. That is a fair expectation in my opinion. In this blog post I want to take a look at some circumstances and obstacles concerning these expectations. I think it will be wise [...] Wed, Feb 24 2010 Tinnitus management course step 1 Becoming Deaf in Norway 2007 As promised, I will write about the tinnitus management course Im following. First of all, this is not a miracle cure. The tinnitus will not go away. It is a way to provide me with the mental skill to control the tinnitus through relaxation and focusing on mental images in order to suppress the tinnitus [...] Mon, Feb 08 2010 Stress, stress management, tinnitus and the road ahead Becoming Deaf in Norway 2007 Dedicated to funnyoldlife, who is having her first CI on february 25th! Good luck to you! In the last few months I have been increasingly aware of the impact stress has and HAS HAD on me. In this post I will get into the subject of stress related to my hearing history and to sound-triggered stress [...] Fri, Feb 05 2010 Skratch no quantum leap Becoming Deaf in Norway 2007 Yeay! I have been impatient and dismayed the last few weeks due to little or no felt progress with the sound, or rather, speech perception capability with my CI. But heres the thing: It IS improving! Only now the improvement is unnoticeable on a day to day or week to week basis. But I could track [...] Sat, Jan 30 2010 Sound 5 month post-activation + testing binaurality Becoming Deaf in Norway 2007 I know I aired some frustration in my last post two days ago about not being able to track any progress (sound wise). This lack of detecting progress is partly my own fault, I havent been up to speed about my listening-training. To my defense I have to say Ive been swamped in everyday life [...] Sun, Jan 10 2010 Bad hear days and other things
Becoming Deaf in Norway 2007 Happy New year everyone! I am a bit frustrated these days, and that frustration has several sources. I feel a bit stagnated and stuck, I cant track any sound improvement. On the contrary I feel like sliding backwards every time Im a bit tired. It is like this: when Im tired, my brain has less [...] Fri, Jan 08 2010 |
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