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Child Safety: 5 Things that Will Help Keep Your Child Safe doozeedad Child Safety: I’d like to be able to just let my kids roam freely. But my daughter Moxie figured out a way to escape recently. She took her brother’s stool, put it under the door, unlocked the slide lock turned the handle, walked down the flight of stairs and slipped under the gate to go... Wed, May 22 2013 · 23 hours ago Social Media and Being Deaf doozeedad There was a great story on this lady who is, like me, a fierce deaf lipreader and she wrote about what a great equalizer Facebook has been for her. That it allows her to participate in ways she’d never be able to, in real life. (the story is here) I couldn’t agree more with everything... Tue, May 21 2013 There is Always Someone Crying doozeedad Mack was crying. Moxie chimed in, bellowing full force. Mikey turned to me, raised his eyebrow (just one, which is impossible for me to do) and wryly asked if we should somehow get Micah to cry too, so you know, we’d have all 3 going at the same time. I facepalm-laughed. *** It’s all the... Mon, May 20 2013 …and then my heart stopped. When Your Child with Down... doozeedad I had just finished changing Mack’s diaper and I was nursing him. Micah and Moxie had been watching a show on Netflix. There was a…stillness in the air. Since I am deaf, it’s the stillness that I rely on with Moxie – not the sounds per se. It’s the vibration in the air, and trust... Sun, May 19 2013 Profile of a Cool Cat: Carrie Griffin Basas doozeedad I know Carrie through our mutual friend, Corbett O”Toole. The details of the introduction are hazy…I know it was on that universal connector, facebook. It was probably something to do with Carrie’s adopting her daughter (that is a beautiful story – you can read it on her blog, Adopting Delilah). But however it was, I... Sat, May 18 2013 Thoughts on Those Rich Manhattan Mommies & Disability... doozeedad The New York Post ran a story yesterday on some wealthy folk from Manhattan that jump lines at places like Disney World by hiring someone with a disability to cut the line for them. The story is here. I’ve got to admit, I was not outraged when I read it. Like, at all. Should I... Wed, May 15 2013 Get Your Ass Sued Like Target, Then Be a Hero! doozeedad I’m sure you all remember that magical moment in which Target hired a boy with Down syndrome as a model, then Rick Smith (aka “Noah’s Dad”) wrote a post that went viral about how Target was so great, they were doing the right thing and not even making a big deal about it. Yeah? Do... Tue, May 14 2013 West Oakland: An Urban Intergalactic Fantasy Homestead Land... doozeedad People talk about San Francisco all the time. They left their heart there, they sit by the dock there. San Francisco is a great little city; I get it. But personally, my heart really belongs to Oakland. I love Oakland. I love it’s lack of pretense. I love it’s rough edges. I love the strong... Mon, May 13 2013 Profile of a Cool Cat: Alice Wong doozeedad Alice was introduced to me by our mutual friend, Sarah Tom. At least I’m pretty sure that’s how it happened. Alice dips her fingers in a lot of interesting pots online – she’s here, there, everywhere and it’s always intriguing. She’s one of those people that has a great sense of what is trending or... Sat, May 11 2013 40 Is the New 30 (and Other Lies) doozeedad Today is my birthday and I am 40. I’ve heard people say now that 40 is the new 30, but I think that’s kind of a crock o’ crap. 40 is not the new 30. 40 is 40. 40 feels old to me. It feels like it needs to wear responsible pants and sturdy, sensible [...] The post 40 Is the New 30 (and Other Lies) appeared first on With a Little Moxie. Fri, May 10 2013 We Had a Big, Huge, Glorious Party doozeedad You know, everyone except Mack had or will have a birthday in the first two weeks of May. In light of that, and of leaving soon for the Pan Am Overland, we thought we’d go all out and have a party. We just don’t do that sort of thing normally. We are ridiculously introverted and... Thu, May 09 2013 It is Moxie’s Birth Day doozeedad This is what I posted on this day last year. I think it still applies. She is one year older – three! – but it holds true. Tomorrow will be a celebration post. ******* Today she is two. Moxie Eleanor Enfys Xuan Mai: Moxie. “Shining Light”. Moxie, “Rainbow”. Moxie, “Plum Blossom”. This time, two years... Tue, May 07 2013 What is a “Third Culture Kid”? doozeedad My One True Darling Man, Mikey and I are both third culture kids. I say that I am in my little bio on this homepage, and a bit in the “About Me” piece, but it’s worthwhile to kind of take a bite out of what that whole term, “Third Culture Kid” means – especially since [...] The post What is a “Third Culture Kid”? appeared first on With a Little Moxie. Mon, May 06 2013 Cool Cat: Joy Elan doozeedad I met Joy about 10 years ago. I was selling jewellery at a Tina Marie concert. Joy came around with a friend – I noticed their signing and hearing aids and got all excited. Our paths definitely cross. We live close to one another, our first born children are almost the same age, we are [...] The post Cool Cat: Joy Elan appeared first on With a Little Moxie. Sat, May 04 2013 Moxie Got Her Hair Cut! (& Mama’s Learning Lightroom) doozeedad I’ve been using just my iphone 4 and Picasa for ever on this blog. It was okay but Picasa started crashing on me and acting like a woman with hormones gone rampant. Like a true former missionary child, I took this as a SIGN FROM GOD to get my slack-assed act together and learn Lightroom.... Thu, May 02 2013 To Number One On the Occasion of His 5th Birthday doozeedad Micah, the other day you turned to me and said, “Mommy! My name has 5 letters in it! M-I-C-A-H has 5 letters!” I told you that that was so cool because you are turning 5 years old, too. 5 years old and 5 letters in your name. Wow. That doesn’t happen often. M-I-C-A-H. M-I-C, from... Wed, May 01 2013 A “Feel Good” Story That Rings Wrong doozeedad Feel-good feels good. A light, alive, inside. We want it, we need it. Parents of kids with “special needs” (- disabilities) really, really need the feel-good, especially when/if we are not used to a world of disability that has chosen us. We want to know life is going to be sweet for our kids,... Tue, Apr 30 2013 A “Feel Good” Story That Rings Wrong doozeedad Feel-good feels good. A light, alive, inside. We want it, we need it. Parents of kids with “special needs” (- disabilities) really, really need the feel-good, especially when/if we are not used to a world of disability that has chosen us. We want to know life is going to be sweet for our kids,... Tue, Apr 30 2013 Countdown to August & The Pan Am Overland doozeedad Making a big life change is pretty scary. But you know what’s even scarier? Regret. Pan Am Overland, baby. It’s one freakin’ huge, gigantic, colossal, enormous (help me out here: more adjectives for “big” please)____________ change. It’s change on a level that is enough to send most people to therapy which is why I suppose... Mon, Apr 29 2013 Cool Cat: Pauline Victoria doozeedad I met Pauline years ago when I was working with my friend Tony Candela on starting up the Alliance of Professionals with Disabilities, in partnership with folks from the Silicon Valley. Pauline was part of that venture. I liked working with her – she’s pragmatic, skilled, articulate and intelligent. And very interesting. Long time readers... Sat, Apr 27 2013 When It Sucks to be Deaf doozeedad [names have been changed, but that's it. this is a copy/paste of an email exchange] Hi “Jane”, “Mary” of the IDSC said that you are all ready for me, re: captioning for the town hall on Tuesday. Great! So what do I need to do? Thanks, Meriah Hi Meriah: Any chance you could call [...] The post When It Sucks to be Deaf appeared first on With a Little Moxie. Wed, Apr 24 2013 The Shape of the Eye: GIVEAWAY doozeedad George Estreich’s super-fine book The Shape of the Eye has been picked up by a different publishing house and is now available in softcover, with a new cover and as I understand it, an extra chapter (Laura is now eleven!). This book is superb; not just superb as a memoir by a parent of child... Tue, Apr 23 2013 Tell Me This Isn’t About Training Money doozeedad Don’t get me wrong here, okay? I like training. After all, as a former professional trainer, it was my bread and butter for more than a decade. I like them. I like that they can be fun, I like the learning, I like that they are usually bite-sized and digestible so not terribly unpopular with... Mon, Apr 22 2013 Profile of a Cool Cat: Joshua Miele doozeedad Josh Miele will be profiled today. I first met him back when I worked at UC Berkeley. My dear friend Lucy Greco suggested him as a keynote speaker when I was looking for someone with enough ‘ooomph‘ (and frankly, who would be funny because I tend to space out during speeches). He was a captivating... Sat, Apr 20 2013 An Open Letter to Safeway: Make a Difference doozeedad Dear Safeway, I’m going to be upfront here: I don’t like your products as much as I like Trader Joe’s. But I often choose to shop with you because I really love the fact that you hire so many people with obvious disabilities. And so given your record of being fair and giving people with... Fri, Apr 19 2013 She’s Going to Need Surgery doozeedad Sigh. I hate this post. I guess I’ve been putting it off because I don’t want to admit that it’s real. But it’s real all right. See Moxie’s left eye there? It’s slowly been moving in. The eye has been turning in. Little by little. Well, we finally went in to get it looked at.... Thu, Apr 18 2013 Life Lived With Moxie doozeedad Thoughts are crowded around in my head, streams and pieces related to last week, yesterday. Yesterday. Boston. Just when you think people couldn’t get shittier, someone sets up a bomb at the finish line of a marathon – run 26 miles and then get blown up? My God. And they say that there were kids... Tue, Apr 16 2013 Profile of a Cool Cat: Susan Henderson doozeedad Getting to Know You Your name: Susan Henderson What’s your connection with disability? I’m a person with a disability — a below the knee amputee, and I work at a disability civil rights organization. My life has always been filled with disability. I am amazed when I meet people who say that they don’t know... Sat, Apr 13 2013 A Spirit, Unsilenced #justiceforethan doozeedad I feel the spirit of Ethan so strongly. I don’t like talking about it because it seems ripe for a trip to FruitLoop Land, but you know what? I do. I feel his spirit. I look at my daughter, Moxie Capricious, delightful, strong willed. Smart. Beautiful. Funny. With such a devoted, loving relationship with her... Thu, Apr 11 2013 It’s About Human Rights: #justiceforethan doozeedad A young man was killed almost 3 months ago. His death was ruled a homicide. The perpetrators got off with a hand tap because the man had Down syndrome. This is what we know. A man was killed. His death was ruled a homicide. The perpetrators got off with a hand tap because the man... Tue, Apr 09 2013 Potty Training! doozeedad Yeah, so this is going on around here! I made sure I titled this post well enough to ward off those of you that have absolutely and completely NO interest in this kind of thing (and I can’t say I blame you). But for those of you that do, here’s what’s happening: The potty training [...] The post Potty Training! appeared first on With a Little Moxie. Mon, Apr 08 2013 Profile of a Cool Cat: Neil Jacobson doozeedad Getting to Know You Your name Neil Jacobson What’s your connection with disability? I have always had Cerebral Palsy. I also consider myself part of the disability community as well as an advocate for people with disabilities Star Trek or Star Wars? Star Trek If you could live in any other country for 2 years,... Sat, Apr 06 2013 The Dishes Can’t Wait doozeedad I keep reading posts on how the dishes can wait. We need to savour this time with our kids, soak up all these moments just sodden with fleeting deliciousness. Forget the cleaning! Let those dishes wait! Go and play with the kids, those small people you (probably) brought into the world and for whom your... Fri, Apr 05 2013 Sugar High doozeedad I want to celebrate holidays like Easter with my kids. Not whole-hog, inflatable bunny in the front yard or a pop-out Jesus Christ emerging from a cave kind of way, but I want to celebrate the intent, spirit and meaning behind Easter: new life. New spirit. Fertility. Last year I wrote a post that I [...] The post Sugar High appeared first on With a Little Moxie. Wed, Apr 03 2013 My Great Story doozeedad I think my story in and of itself is a plump one. Take your pick, but most of the facets are individually pieces that people will write long about – from the early years on the rural sheep farm to the car accident. My parents becoming Baha’i's, then moving to the Fiji Islands. Growing up [...] The post My Great Story appeared first on With a Little Moxie. Mon, Apr 01 2013 Profile of a Cool Cat: Rich Donovan doozeedad Today is the day in which I’m going to finally do something that I’ve wanted to do for a long time here on this blog: profile an interesting person with a disability each week. Without further ado, please meet my first guest, Rich Donovan. ________________________ Getting to Know You Your name: Rich Donovan, CEO of... Sat, Mar 30 2013 “It’s Not that Complicated, Is It” – by the Unknown... doozeedad [repost from the Unknown Contributor - because she said it perfectly] It’s Not that Complicated, Is It? The Ethan Saylor case has dominated my mind, my heart, and my Facebook feed for a few weeks now. I have read just about everything news agencies, bloggers, and organizations have published on it. (Is your Facebook feed... Sat, Mar 30 2013 He Deserved to Die: He Had the Temerity to Be Born with... doozeedad When a young man with Down syndrome is held down by 3 off duty police officers inside a movie theatre over his refusal to purchase a second ticket and he dies because of their actions, what does this say? When the largest national organization for Down syndrome meets with the Department of Justice and comes... Wed, Mar 27 2013 Down syndrome is the Hoodie in the Room: “Robert Ethan... doozeedad The recent HuffPo article on the Robert Saylor case really pissed me off. Did you read it? Robert Ethan Saylor, Disabled Man Who Died In Custody, Had Heart Problem. Let me get this straight: a young black man in BART station in Oakland (the very one in which my husband works, I might add) gets... Wed, Mar 27 2013 MacQuinn at 5 Months doozeedad My little baby with the Old Soul is all of 5 months now. I had hoped when I was pregnant with him that we’d be embarking upon the Pan Am Overland at this point, but it’s looking like August will be our launching date. And you know what? That’s completely fine. I am honestly not [...] The post MacQuinn at 5 Months appeared first on With a Little Moxie. Tue, Mar 26 2013 A Quick Word on the Robert Saylor Case doozeedad Robert Saylor was a young man with Down syndrome. He was held down by 3 off duty cops because he refused to leave the movie theater and didn’t have a second ticket for the second time he wanted to watch a movie. He was held down, handcuffed three times and died from being suffocated. They... Mon, Mar 25 2013 A Healthy Choice [Sponsored Post] doozeedad So the three kids were sick, and so was My Man (and I want to make a joke about what he’s like when he’s sick, but I don’t want to get in trouble – so just take an imaginative leap there). I was completely burned out, exhausted. I hadn’t had a decent night of sleep [...] The post A Healthy Choice [Sponsored Post] appeared first on With a Little Moxie. Sun, Mar 24 2013 If I Could Move Into An Aquarium… doozeedad If I could move into an aquarium, I would. I’d take my family too, of course. The only problem is that the fish might not be cool with our cooking ‘em after looking at ‘em… The post If I Could Move Into An Aquarium… appeared first on With a Little Moxie. Sat, Mar 23 2013 Here’s My Wacky Socks doozeedad I woke up on the nauseous side of the bed this morning, World Down Syndrome Day. Micah came in, hacking and heaving, Mack was drenched in snot and Moxie is not only sick but is on some kick where she pushes me away and wants nothing to do with me. I want to tell her [...] The post Here’s My Wacky Socks appeared first on With a Little Moxie. Thu, Mar 21 2013 3 for 21: A Bite Sized Blog Hop for Down Syndrome and Change doozeedad Returning from the bathroom the other day, I saw that My One True Darling Man had given baby Mack some mashed up banana in my absence. This was it; his first bite of food – my last baby eating something for the very first time. An event of real significance and I was not there... Tue, Mar 19 2013 Stream of Consciousness: Monday Morning doozeedad Catching up right here and now involves a whole lot of stuff like snot coming out of my kids, as well as raspy voices and big, splashy sneezes – the kind that explode right in your face, dousing you with all their germtastic glory. Keeping Mack and Micah relatively snot-free isn’t that bad, but Moxie?!... Mon, Mar 18 2013 From the Kingdom of Sickdom doozeedad The gods of Sick finally decided to come on down and pay us a visit. I suppose they thought it had been too long or something. I guess they didn’t want to leave anyone out either – because it’s like they had a party with each and every one of us. They’ve totally outstayed their [...] The post From the Kingdom of Sickdom appeared first on With a Little Moxie. Sun, Mar 17 2013 No Cost Options for Getting Your Child (with a Disability)... doozeedad We all know apps can be great with kids… but what if your budget doesn’t allow for the purchase of an ipad itself? Here are some no cost options for getting your child (especially, your child with a disability) an ipad. *** Local Resources: Never underestimate the power of local. We ourselves received Moxie’s ipad... Fri, Mar 15 2013 Some Thoughts on Monica and David doozeedad Monica and David: the story of a couple with Down syndrome who get married and begin their life together. It was originally aired a couple of years ago but Netflix just picked it up, which means I’m watching it for the first time. I should note that since the captioning is not consistent, all of... Wed, Mar 13 2013 Educational Apps for Kids with Down Syndrome
doozeedad From Star Trek to the hands of my almost-3 year old daughter, the iPad has come a long way. I’m still learning all that it has to offer my child, and the apps therein that help her learn to speak, read, write, calculate and more: compose her first opera. Lisa Orvis runs the Educational Strategies... Mon, Mar 11 2013 |
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